Before booking

Ideally discuss your holiday plans with your Specialist Metabolic Team (SMT).

You will find that some destinations might be more suitable than others. Sometimes, a trip to a particular location might simply need extra planning.

Customs

If you are travelling overseas, you should obtain a letter from your SMT confirming your name, date of birth and diagnosis.

This should explain the need for any special dietary and/or medical supplies you carry, including your starch.

Paperwork

You might find yourself having to explain your condition to somebody who has never heard of it before. They may not even speak the same language.

It can be helpful to packing a folder which contains all the relevant information on GSD such as:

• Information on your condition
• Details of emergency regimen
• Contact details for the SMT in the UK

Take a look at our printable travel checklist. Remember you may not always have internet access!

Lost luggage

You should split your essential supplies between hand and hold luggage. This gives you extra peace of mind if your hold luggage goes missing.

Ordering in advance

Sometimes it can take time to obtain feed or equipment supplies. So it is best to order adequate supplies well in advance of going away.

Your SMT can help with this. The more notice you give them, the better.

Travel insurance

Book your travel insurance in good time, ideally when you book your holiday.

If you are unfortunate enough to become unwell on holiday, appropriate insurance should help cover you for any expenses.