Welcome to GSD & Me
The content of this website is intended for UK patients. Information concerning liver Glycogen Storage Disease management is based upon UK practice. As dietary management may vary in different countries, please speak to your metabolic team at the hospital for individualised advice for your GSD.
With well-managed GSD, you should be able to do most jobs just as well as anybody else.
Regular meals and snacks
You need regular meals and snacks. This may mean you need regular breaks from your work, so it is important for your employer to understand that.
You can use your diaries to schedule in your lunch and snacks, so meetings don’t get booked when you need to eat. You may be able to be a few minutes late for some meetings, as long as your employer is aware of the situation.
Consuming cornstarch at work
You may need to consume cornstarch at work. For some individuals, having a private place to do this may be helpful.
Spotting early signs of hypos
One of the early signs of hypoglycaemia, or a low blood glucose level, can be a change in behaviour. This change in behaviour may be noticed by others even if you do not. If colleagues are aware of this, and other signs of ‘hypos’, they can help you identify them earlier. This means that ‘hypos’ can be dealt with more quickly and effectively.
As with any medical condition, it’s important to discuss your particular requirements (for example, time off for appointments) with your employer. This will enable them to make reasonable adjustments to your working conditions so you can carry out your job. Don’t be afraid to talk to your employer about your health.
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